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RED HOT Contributors


Guidelines for Designing Patient-Centered Research Initiatives


Source: Thinkstock

March 21, 2017 – Developing patient-centered research initiatives is key to driving meaningful study protocol and fueling literature that is useful and relevant to patients.

However, not enough healthcare experts are well-versed in how to create patient-centered research design, according to a PCORI-commissioned report published in the Annals of Family Medicine.

“Many researchers, patients, and other stakeholders, however, lack clarity about when and how to engage as partners within the clinical research process,” said the report’s authors.

“To address the need for guidance on creating meaningful stakeholder partnerships in patient-centered clinical comparative effectiveness research, the Patient-Centered Outcomes Research Institute (PCORI) developed the PCORI Engagement Rubric (Rubric).”

Although PCORI first issued its PE Rubric back in 2014, the organization updated the Rubric in 2016. This new

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